The Moore Family Foundation
Living Boldly. Building Hope.
We're Mark and Beth Moore. Our son William and our daughter Mary were both born with Spinal Muscular Atrophy — four years apart, with two very different stories. This foundation is how we carry both of them forward.
Our story
2011 · William
William was diagnosed with SMA Type 1 at two months old. There was no treatment, and we were told to prepare for the worst. He lived boldly anyway — every day his condition allowed — until 2019.
2015 · Mary
Mary was born with SMA, too. This time there was a clinical trial, and because she was treated early, she walks, talks, and twirls a baton today.
The difference between their stories was research, early diagnosis, and access to care. That difference is why we started this foundation — for every family still waiting on their breakthrough.
Read the full storyGive
Your gift funds SMA research and helps families reach the specialized care and community they need.
Ways to giveShades of Strength Gala
Join us for an evening benefiting Cure SMA at The Ritz-Carlton, Dallas.
Gala detailsGet involved
Host a fundraiser, partner with us, or introduce us to a family facing a new diagnosis.
Get involvedOur mission
To help every person facing SMA live boldly — by funding research and supporting access to treatment, medical care, and community.